VI. Краткое обобщение основных пракических методов лечения поф

Kaplan FS, Le Merrer M, Glaser DL, Pignolo RJ, Goldsby R, Kitterman JA, Groppe J, Shore EM. Fibrodysplasia ossificans progressiva (ПОФ). Best Practice & Research – Clinical Rheumatology 22: 191-205, 2008

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VII. Заключение

Stephens T & Brynner R. Dark Remedy: The Impact of Thalidomide And Its Revival as a Vital Medicine. Perseus Books, 208 pages, 2001

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X. Члены международного клинического консорциума по прогрессирующей оссифицирующей фибродисплазии

Benjamin Alman, M.D., FRCSC

Head, Division of Orthopaedic Surgery

The Hospital for Sick Children

555 University Avenue

Toronto, Ontario

Canada M5G 1X8

Tel: 416- 813-7980

Fax: 416-813-6414

Email: benjamin.alman@sickkids.ca

Darko Anticevic, M.D.

Professor

Department of Orthopaedics

University of Zagreb School of Medicine

Salata 6

10000 Zagreb

Croatia

Tel: 011-385-1-4819911

Email: darko.anticevic@zg.htnet.hr

John Stephen Bamforth, M.D. Department of Medical Genetics 8-53 Medical Sciences building University of Alberta Hospital Edmonton, Alberta T6G 2H7 Canada

Tel: 1-780-407-7327 Fax: 1-780-407-6845 Email: sbamfort@cha.ab.ca

Jonathan Bernstein, M.D.

Director

Children’s Center for Cancer & Blood Diseases of Las Vegas

1090 E. Desert Inn

Suite 200

Las Vegas, NV 89109

Tel: 702-732-1493

Fax: 702-732-1080

Email: jonbern1@aol.com

Cindy Blifeld, M.D.

Lompoc Valley Pediatric Care Center, Inc.

1111 East Ocean Avenue #6

Lompoc, CA 93436

Tel: (805) 736-4970

Fax: (805) 736-7592

Email: CindyBlifeldMD@lvpcc.com

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Tae-Joon Cho, M.D.

Associate Professor

Department of Orthopaedic Surgery

Seoul National University Children’s Hospital

28 Yongon-dong Jongno-gu

Seoul 110-744

Republic of Korea

Tel: 011-82-2-760-3640

Fax: 011-82-2-745-3367

Email: tjcho@snu.ac.kr

In Ho Choi, M.D.

Professor

Department of Orthopaedic Surgery

Room 6314

Seoul National University Children’s Hospital

28 Yongon-dong Jongno-gu

Seoul 110-744

Republic of Korea

Tel: 011-82-2-2072-2878

Fax: 011-82-2-2745-3367

Email: inhoc@snu.ac.kr

J. Michael Connor, M.D.

Professor and Chief

Institute of Medical Genetics

University of Glasgow Medical School

Glasgow G3 8SJ

Scotland

United Kingdom

Tel: 011+44 141 201 0363/2114/0365

Fax: 011-44-141-357-0364

E-mail: J.M.Connor@clinmed.gla.ac.uk

Carmen L. De Cunto, M.D.

Professor and Chief

ПОФ Clinical Advisor, Argentina

Pediatric Rheumatology Section

Department of Pediatrics

Hospital Italiano de Buenos Aires

Gascón 450, 1181

Ciudad Autónoma de Buenos Aires

Argentina

Tel: 5411-4959-0578

Fax: 5411-4959-0577

Email: carmen.decunto@hospitalitaliano.org.ar

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Patricia L. R. Delai, M.D.

Orthopaedic Department of Santa Casa de Misericórdia de

São Paulo School of Medicine

Faculdade de Ciências Médicas da Santa Casa de São Paulo –

Departamento de Ortopedia

Rua Pedro de Toledo 129 cj 121 - Vila Clementino

Cep: 04039-001

São Paulo

Brazil

Tel: 55-11- 5539-5817 (office) or 55-11- 9658-8816 (cell) or

55-11- 3501-1891 (home)

Email: patriciadelai@uol.com.br

Martin Delatycki

Associate Professor

Director, Bruce Lefroy Centre for Genetic Health Research

Clinical Geneticist, Genetic Health Services

Victoria Murdoch Children’s Research Institute

Royal Children's Hospital

Flemington Road

Parkville, 3052

Victoria

Australia

Tel: +61 3 8341 6284

Fax: +61 3 8341 6390

Email: martin.delatycki@ghsv.org.au

Maja DiRocco, M.D.

Unit of Rare Diseases

Department of Pediatrics Gaslini Institute

Largo Gaslini 3

16147 Genoa

Italy

Tel: +39-010-563-6794

Fax: +39-010-563-6211

Email: majadirocco@ospedale-gaslini.ge.it

Gerald Ente, M.D. 344 1st St

Mineola, NY 11501-3733 Tel: 516- 873-3683 Fax: 516-873-3084 Email: entedoc@aol.com

Gabriele Gillessen-Kasebach, M.D.

Professor and Chair of Genetics

Institut für Humangenetik Lübeck

Universitätsklinikum Schleswig-Holstein

Ratzeburgeralle 160

D-23538 Lübeck

Germany

Tel: +494515002620

Fax: +494515004187

Email: g.gillessen@uk-sh.de

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David L. Glaser, M.D.

Assistant Professor

Department of Orthopaedic Surgery

University of Pennsylvania Health System

Presbyterian Hospital/1 Cupp

39th and Market Street

Philadelphia, PA 19104

Tel: 215-349-8735 or Cell: 215-510-3261

Fax: 215-349-5928

E-mail: david.glaser@uphs.upenn.edu

Robert Goldsby, M.D.

Associate Professor

Department of Pediatrics, Division of Pediatric Hematology/Oncology

Box 0106

University of California San Francisco

San Francisco, CA 94143-0734

Tel: 415-476-3831

Fax: 415-502-4372

Email: goldsbyr@peds.ucsf.edu

Jay Groppe, Ph.D.

Associate Professor

Department of Biomedical Sciences

Baylor College of Dentistry

Texas A & M University Health Science Center

3302 Gaston Avenue

Dallas, Texas 75246

Tel: 214-370-7203 (office) or 214-370-7212 (laboratory)

Fax: 214-874-4538

Email: jgroppe@bcd.tamhsc.edu

Nobuhiko Haga, M.D.

Professor

Department of Rehabilitation Medicine

Graduate School of Medicine

The University of Tokyo

7-3-1 Hongo, Bunkyo-ku

Tokyo 113-8655

Japan

Tel: 011+81-3-5800-8795

Fax: 011+81-3-5684-2094

Email: hagan-reh@h.u-tokyo.ac.jp

Charles C. Hong, M.D., Ph.D.

Assistant Professor

Department of Medicine

Vanderbilt University School of Medicine

2220 Pierce Avenue

383 Preston Research Building

Nashville, TN 37232

Cell: 615-332-1402

Phone: 615-936-7032

Email: charles.c.hong@vanderbilt.edu

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Julie Hoover-Fong, M.D., Ph.D.

Clinical Director

Greenberg Center for Skeletal Dysplasias

McKusick-Nathans Institute of Genetic Medicine

Johns Hopkins University

600 N. Wolfe Street – Blalock 1008

Baltimore, MD 21287

Tel: 410:955-3071

Fax: 410-502-2375

E-mail: jhoover2@jhmi.edu

Frederick S. Kaplan, M.D.

Isaac and Rose Nassau Professor of Orthopaedic Molecular Medicine

Director, Center for Research in ПОФ & Related Disorders

The University of Pennsylvania School of Medicine

Hospital of The University of Pennsylvania

Department of Orthopaedic Surgery

Silverstein Pavilion - Second Floor